TY - JOUR
T1 - Caregivers’ Accounts of School Searches for Children with Cerebral Palsy in a Developing Sub-Saharan African Context
AU - Opoku, Maxwell Peprah
AU - Kyeremateng, Joana D.A.
AU - Elhoweris, Hala
AU - Dogbe, Joslin Alexei
AU - Nketsia, William
AU - Hammond, Charles
AU - Belbase, Shashidhar
N1 - Publisher Copyright:
© The Author(s), under exclusive licence to Springer Nature Switzerland AG 2023.
PY - 2024/6
Y1 - 2024/6
N2 - Objectives: Cerebral palsy (CP) is a neurological condition caused by damage to the part of the brain known as the cerebral cortex and affecting the coordination and movement of individuals. The challenges faced by caregivers raising children with CP cannot be overemphasized. However, information regarding the accessibility of education for children with CP is scant or unreported. In this study, we investigated the experiences of parents in their efforts to enroll their children with CP in schools. Methods: Qualitative semi-structured interviews were conducted with a cohort of 40 parents with children with CP who were observed for 5 years. The interviews were transcribed and subjected to thematic analysis. Results: The results that emerged from the thematic analysis demonstrated the difficulties faced by parents in searching for a school for their children with CP. According to the study participants, both special and regular schools were inaccessible to children with CP, due to unfriendly school environments, transportation problems, and high costs, as well as a lack of resources, qualified staff, and human resources. Conclusions: The findings underscore the urgent need for policymakers in Ghana to consider or make provisions for the education of children with CP. Without this, children with CP and their families could be entrapped in a vicious cycle of poverty, deprivation, and dependence on others for their livelihoods.
AB - Objectives: Cerebral palsy (CP) is a neurological condition caused by damage to the part of the brain known as the cerebral cortex and affecting the coordination and movement of individuals. The challenges faced by caregivers raising children with CP cannot be overemphasized. However, information regarding the accessibility of education for children with CP is scant or unreported. In this study, we investigated the experiences of parents in their efforts to enroll their children with CP in schools. Methods: Qualitative semi-structured interviews were conducted with a cohort of 40 parents with children with CP who were observed for 5 years. The interviews were transcribed and subjected to thematic analysis. Results: The results that emerged from the thematic analysis demonstrated the difficulties faced by parents in searching for a school for their children with CP. According to the study participants, both special and regular schools were inaccessible to children with CP, due to unfriendly school environments, transportation problems, and high costs, as well as a lack of resources, qualified staff, and human resources. Conclusions: The findings underscore the urgent need for policymakers in Ghana to consider or make provisions for the education of children with CP. Without this, children with CP and their families could be entrapped in a vicious cycle of poverty, deprivation, and dependence on others for their livelihoods.
KW - Cerebral palsy
KW - Ghana
KW - Inclusive education
KW - Parents
KW - Special school
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U2 - 10.1007/s41252-023-00341-6
DO - 10.1007/s41252-023-00341-6
M3 - Article
AN - SCOPUS:85163034845
SN - 2366-7532
VL - 8
SP - 288
EP - 298
JO - Advances in Neurodevelopmental Disorders
JF - Advances in Neurodevelopmental Disorders
IS - 2
ER -