Recruiting older people into a large, community-based study of heart failure

Sarah Barnes, Merryn Gott, Sheila Payne, Chris Parker, David Seamark, Salah Gariballa, Neil Small

Research output: Contribution to journalArticlepeer-review

40 Citations (Scopus)


This paper highlights some of the challenges encountered when recruiting older people with heart failure into longitudinal, community-based research. It draws on the experience gained in a study to provide insights into the palliative care needs of older people with heart failure and the timing and need for service interventions. Five hundred and forty-two people with heart failure (New York Heart Association (NYHA) stages II—IV) and 213 of their informal carers were recruited from primary care practices in four areas of the UK. Ethical issues arising around gate-keeping, terminology and participant burden are discussed along with challenges faced during the recruitment process. Strategies to increase general practitioner and patient recruitment are provided. The paper concludes that prospective longitudinal studies are of particular relevance to chronic illness, and the complexity of setting up such research must be acknowledged and appropriately resourced.

Original languageEnglish
Pages (from-to)321-329
Number of pages9
JournalChronic Illness
Issue number4
Publication statusPublished - Dec 2005
Externally publishedYes

ASJC Scopus subject areas

  • Health Policy


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